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How Do You Deal With Being Stuck At Home Due To Illness?

#1 User is offline   Laica 

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Posted 16 April 2009 - 01:08 PM

Is anyone else homebound or mostly homebound because of a disability/chronic illness? If so, how do you deal with it? What do you do to pass the time and keep your spirits up? What is your biggest source of support?

I have Multiple Chemical Sensitivity (MCS) which means that even very low levels of chemicals, which are normally considered "safe", make me very ill. For example, I can't use or be around perfume, scented personal care products, regular detergent like Tide, fabric softener, cleaning products, etc. So I basically can't go shopping, to the grocery store, mall, to other people's houses... except for one or two relatives who don't use any of that stuff. I've dropped out of University three times for health reasons, which is to me the hardest thing.

Anyway, I read a lot of books, watch a lot of dramas smile.gif, I've learned to crochet in the last year. My mom is the most amazing support for me. She's like superwoman and Mother Theresa. She took care of me during the times when I couldn't even feed myself... but my whole family is really great.

I think the thing that helps me the most is religion though. If I didn't believe in God and that this life isn't all we get, I would have killed myself a long time ago. Faith has got me through a lot.

And my little sister. She's ten and she's HILARIOUS.

Even as we sit
silently in the same room
or scream things we will be ashamed of
in 27 seconds, tears frozen
on angry faces;
we are still bound,
indifferent or fighting.
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#2 User is offline   PoppinBC 

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Posted 16 April 2009 - 05:35 PM

I don't have a serious illness like yours, but when things go south for me I turn to music. I've played piano for 12 years now, and it's a way for me to express myself and also allows me to clear my mind.

It's never too late to learn an instrument either. I know a lady who started piano at the age of 45, and she's now 60 and loves it!


Some instruments lend themselves well to learning on your own, such as guitar. I know it's a bit biased because I have a piano background, but I am self-taught guitar, just from books, and find that to be very similar to piano in the relief it provides.
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#3 User is offline   Laica 

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Posted 16 April 2009 - 05:52 PM

Yeah, music is definitely a great way to relieve stress/sadness.

I don't play an instrument, but I'm a decent singer and I love to sing... it actually relieves pain! Must be the endorphins it releases. smile.gif

You sound very talented, to teach yourself guitar as a second instrument. My uncle has an electric guitar and he sort of taught himself... though now he has kids I don't think he plays anymore, lol.
Even as we sit
silently in the same room
or scream things we will be ashamed of
in 27 seconds, tears frozen
on angry faces;
we are still bound,
indifferent or fighting.
0

#4 User is offline   taiji. 

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Posted 16 April 2009 - 06:29 PM

wow props to you for being so strong. i remember once i was looking for a room, and a landlord lady had the same condition as yours. she specifically mentioned that she cannot allow anything with a scent. if you don't mind me asking, what happens if you smell perfume and other scented products?

for the past couple of years, i've been spending a lot of time at home by myself since my life was dedicated to school and work. i made a habit of watching dramas and movies. smile.gif i also spend time "inventing" and "experimenting" different kinds of food with my creative ideas. usually turns out pretty good. smile.gif when i used to have a lot of time, i produced music with my studio equipments. it's the best feeling when you are concentrated in creating something and you are in your own world.
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#5 User is offline   erure 

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Posted 16 April 2009 - 06:32 PM

I was recently stuck at home for a couple of days after a minor operation on my foot. I kind of veered off in the wrong direction -- ordered food, watched movies, and lounged about the couch (actually am still doing that -.-)... I got really behind in school and everything, but it was nice being able to just relax for a few days... Also my house looks like a tornado went through it, but yeah.
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#6 User is offline   gisbiz 

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Posted 16 April 2009 - 06:33 PM

i've been wanting to start a thread like this but didn't have the courage to. i'm glad u did. thank you. smile.gif

i was born with a heart defect along with other minor complications. my childhood was depressing. i spent most of my time at the hospital. not only that but i'm very sensitive to light and i cant be outside for too long or my nose would bleed and i'd get horrible migraines. my immune system is weak, i get ill more often than others. at one time i did dropped out of college due to my illness. some of the medications that i took, caused me a great deal of depression. it made me felt lonely.. like everyone else in the world spoke one language, except me. its hard because i don't believe people can actually understand what i go thru or relate to me. its even more frustrating when your doctor doesn't really know what else to do with you.

i try to stay positive i guess? i listen to music, watch a lot of cartoons, i swim a lot, i do simple exercise to relieve stress, i come on soompi and read their humor section, and i volunteer. but honestly.. its hard to stay positive when you're not feeling well.

my biggest support would be my television. seriously.
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#7 User is offline   Laica 

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Posted 16 April 2009 - 06:48 PM

QUOTE (taiji. @ Apr 16 2009, 10:29 PM) <{POST_SNAPBACK}>
wow props to you for being so strong. i remember once i was looking for a room, and a landlord lady had the same condition as yours. she specifically mentioned that she cannot allow anything with a scent. if you don't mind me asking, what happens if you smell perfume and other scented products?

for the past couple of years, i've been spending a lot of time at home by myself since my life was dedicated to school and work. i made a habit of watching dramas and movies. smile.gif i also spend time "inventing" and "experimenting" different kinds of food with my creative ideas. usually turns out pretty good. smile.gif when i used to have a lot of time, i produced music with my studio equipments. it's the best feeling when you are concentrated in creating something and you are in your own world.


I get various symptoms, my skin gets very red and itchy, I get "brain fog" - confused/disoriented and have trouble understanding and focusing, my body swells up and I get really tired all of a sudden... among other things. I've been undergoing treatment since August and I'm getting a little stronger, slowly.

Oh, I love trying new recipes. I tend to bake a lot when I'm feeling down. But I'm not supposed to eat a lot of sugar so I end up sharing what I make... so my relatives all love when I come over, lol. I definitely know what you mean about the feeling of losing yourself in a creative mood. I feel like that when I'm writing or painting.

QUOTE (gisbiz @ Apr 16 2009, 10:33 PM) <{POST_SNAPBACK}>
i've been wanting to start a thread like this but didn't have the courage to. i'm glad u did. thank you. smile.gif

i was born with a heart defect along with other minor complications. my childhood was depressing. i spent most of my time at the hospital. not only that but i'm very sensitive to light and i cant be outside for too long or my nose would bleed and i'd get horrible migraines. my immune system is weak, i get ill more often than others. at one time i did dropped out of college due to my illness. some of the medications that i took, caused me a great deal of depression. it made me felt lonely.. like everyone else in the world spoke one language, except me. its sad because i don't believe people can actually understand what i go thru or relate to me. its even more frustrating when your doctor doesn't really know what else to do with you.

i try to stay positive i guess? i listen to music, watch a lot of cartoons, i swim a lot, i do simple exercise to relieve stress, i come on soompi and read their humor section, and i volunteer. but honestly.. its hard to stay positive when you're not feeling well.

my biggest support would be my television. seriously.


You're very welcome. smile.gif

I know what you mean about not being able to relate to others. There was a time when I would look at people walking around outside, as if they were so carefree, and wonder what world they were living in. It's like there's a wall between you and everyone else. I still feel like that sometimes. It's hard.

And doctors, don't get me started on doctors. I won't go into how often they've screwed me over. I basically had to figure out what was wrong with me on my own. It took 4 years.

Feel free to message me if you ever feel down and you need to talk. I don't know exactly how you feel but I've been through something pretty similar. Stay strong. smile.gif
Even as we sit
silently in the same room
or scream things we will be ashamed of
in 27 seconds, tears frozen
on angry faces;
we are still bound,
indifferent or fighting.
0

#8 User is offline   jonogunn 

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Posted 16 April 2009 - 09:41 PM

QUOTE (gisbiz @ Apr 16 2009, 07:33 PM) <{POST_SNAPBACK}>
i've been wanting to start a thread like this but didn't have the courage to. i'm glad u did. thank you. smile.gif

i was born with a heart defect along with other minor complications. my childhood was depressing. i spent most of my time at the hospital. not only that but i'm very sensitive to light and i cant be outside for too long or my nose would bleed and i'd get horrible migraines. my immune system is weak, i get ill more often than others. at one time i did dropped out of college due to my illness. some of the medications that i took, caused me a great deal of depression. it made me felt lonely.. like everyone else in the world spoke one language, except me. its hard because i don't believe people can actually understand what i go thru or relate to me. its even more frustrating when your doctor doesn't really know what else to do with you.

i try to stay positive i guess? i listen to music, watch a lot of cartoons, i swim a lot, i do simple exercise to relieve stress, i come on soompi and read their humor section, and i volunteer. but honestly.. its hard to stay positive when you're not feeling well.

my biggest support would be my television. seriously.


no your biggest support is cartman. because he does wuteva he wants!
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#9 User is offline   Tuxedomask 

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Posted 17 April 2009 - 12:18 AM

I flew up to Canada recently to surprise my girlfriend and family for 9 days but ended catching the flu and staying in bed for 6 of the 9 days sad.gif

Nothing I could really do...It sucked lol...I went to with the intentions of surprising everyone but everyone ended up taking care of me lol.
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#10 User is offline   1336.5 

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Posted 17 April 2009 - 06:26 AM

While I am sorry to hear about your illness and do hope that there is something the doctors can do to cure/improve your condition to allow you greater freedom in the (hopefully near) future, to address your current question, I've got two words for you....VIDEO GAMES.


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#11 User is offline   ayahuasca 

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Posted 20 April 2009 - 03:35 PM

I was in Korea earlier this year and went snowboarding with my brother. Instead of having an awesome weekend of snowboarding followed by a weekend of activites and drinking, I crashed into a girl and ripped a gash so big in my left butt cheek that the muscle was severed. I ended up in a Seoul hospital for 2 weeks getting pumped with blood, fluids and antibiotics. I still had a week with my brother luckily. The two weeks were pretty horrendous. I was confined to bed for 3 days after the operation and I could barely move. Luckily for me, I had brought my laptop to korea and my brother dropped that off for me along with some external hdd filled with anime, dramas and movies.

The other times I get sick, I am literally so sick that I can't move without wanting to throw up. The few times I've had the flu in my life I've been bedridden for a minimum 4 days during which I can't eat, move or sleep. It's the sort where I want to die by the 3rd day I'm in so much pain. The worst flu I had lasted for 6 days but it was a further 4 days before I was back to full strength. Luckily I only get flu like that once every 5-6 years and I haven't had it for almost 8 years now... I think it's saving up
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#12 User is offline   xx_swit_c_xx 

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Posted 23 April 2009 - 07:47 AM

Dang........... =( I'm sorry to hear about your illness. Mine's not that extreme?

I was in a car accident so I couldn't leave the bed for a month or two (except to pee) haha.. and then yeah i had to really just stay sitting cuz i wasn't able to walk...

I mainly:
- Watched TV/Movies
- Did lots of internet/computer at my bed... youtube videos.. FACEBOOK =)
- Had visitors.. where then I could play like Scrabble or other games...
- I also did read a lot of books and did a LOT of origami cranes

And I think even though I did get really frustrated and depressed cuz I couldn't see anyone.. I think it was KNOWING that "ok, i just have to hold on for a few more months and I can go out and stuff" really made me okay... you know? Knowing that it wasn't permanent... so honestly that's different from your case where it is permanent, right?

I always cheered myself up by telling myself to be thankful cuz there are people always worse off in you.
=] I hope you will continue to have a good relationship with God... Your church members should visit you more often without the perfume, deoderant, etc..

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#13 User is offline   may76 

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Posted 23 April 2009 - 04:56 PM

Hello, I can relate to you because one time in my life I had to stay home for a year due to illness. I get too sensitive to a lot of things. But later on I found out the major cause of it is fear. Yes, I am sick back then but it was aggravated by not knowing what will happen next. What are the things I can't do. Depression also sets in but I am also glad I'm with the Lord he gave me strength when I was so weak. I guess the things you can do, are things that matters, sharing your experiences to other people and how you are coping with it. Sometimes, eventhough we are the one who needs help the only best cure is to help other people too. If you are good in writing, why not write your everyday challenges and how you were able to overcome them. Get inspiration from the people around you. You might be sick but still can do a lot of things. And also believe that nothing is impossible with our God, he is our healer. I am healed because of him, yes, there will still be fears but knowing who holds my life, I know I am safe.

Time is gold, use it well, yes, watch movies, read books, go to places that you are allowed to go and pray that you will be able to go out and come back home safe. We need purpose in life in order to beat any sickness.
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#14 User is offline   Laica 

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Posted 27 April 2009 - 07:38 PM

QUOTE (ayahuasca @ Apr 20 2009, 07:35 PM) <{POST_SNAPBACK}>
I was in Korea earlier this year and went snowboarding with my brother. Instead of having an awesome weekend of snowboarding followed by a weekend of activites and drinking, I crashed into a girl and ripped a gash so big in my left butt cheek that the muscle was severed. I ended up in a Seoul hospital for 2 weeks getting pumped with blood, fluids and antibiotics. I still had a week with my brother luckily. The two weeks were pretty horrendous. I was confined to bed for 3 days after the operation and I could barely move. Luckily for me, I had brought my laptop to korea and my brother dropped that off for me along with some external hdd filled with anime, dramas and movies.


Ouch. Not the nice vacation you were expecting. Anime and dramas definitely help when you're immobile, I agree.

QUOTE (may76 @ Apr 23 2009, 08:56 PM) <{POST_SNAPBACK}>
... And also believe that nothing is impossible with our God, he is our healer. I am healed because of him, yes, there will still be fears but knowing who holds my life, I know I am safe.

Time is gold, use it well, yes, watch movies, read books, go to places that you are allowed to go and pray that you will be able to go out and come back home safe. We need purpose in life in order to beat any sickness.


I'm glad to hear you're feeling better. It's true, healing ultimately comes from God. I believe that too. And the emotional component of illness is so underrated in our medical system. I don't think you can be cured just by having a positive attitude (although I can't tell you how many well-meaning people have told me that, I just wanted to slap them), but I definitely agree that you can't get well WITHOUT a positive attitude.
Even as we sit
silently in the same room
or scream things we will be ashamed of
in 27 seconds, tears frozen
on angry faces;
we are still bound,
indifferent or fighting.
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